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Living with Parkinson's


Understanding Physical Changes in Parkinson's Disease
Parkinson's causes many muscular and skeletal changes that lead to excerbation of other symptoms and can cause considerable motor issues. In this article, we outline these symptoms, how to spot them early and how. to prevent long term issues and maintain quality of life


Stories of Parkinson’s # 14 Shobhna Tai
मराठीत वाचा I met an anesthesiologist at my friend’s house. When my friend informed her that I was connected to Parkinson’s Mitra Mandal, she said, “I would like to work with you. The nature of my work is such that I am busy the whole day. But, still if there is anything that I can help with I would like to do it in my spare time.” While talking she informed us that her mom was diagnosed with Parkinson’s disease. She said, “My mother was suffering from depression, we consulte


Stories of Parkinson’s # 13 Shobhna Tai
हिंदी में पढ़े मराठीत वाचा In one of my previous blogs I had mentioned that it is difficult to diagnose Parkinson’s disease in Parkinson’s patients without the tremors. We will talk about it, but later. Before that it is important to talk a little about Parkinson’s diagnosis. There is no single specific test or examination for the diagnosis of Parkinson’s. There is no way to check for Parkinson’s, like blood pressure or diabetes. Hence, the process of diagnosis is complic


Stories of Parkinsons # 12 Shobhna Tai
हिंदी में पढ़े मराठीत वाचा My cousin, Anil Kunkerkar , called me from Mumbai. His brother in law had been diagnosed with PD. Anil said,” I have heard that you can cure Parkinson’s.” I was speechless, I had been trying to create an awareness against those claiming to cure Parkinson’s. I warned by writing and raising my voice for Parkinson’s literacy. Was this all in vain? Not hearing my reply, Anil asked, “Can you hear me?” I replied, rising from my stupor,” Oh, yes yes ! I


The Ones Who Left Us #2 Late Mohan Kulkarni Shobhna Tai
मराठीत वाचा हिंदी में पढे 11th April is celebrated as World Parkinson’s Day, it is also the death anniversary of our member Mohan Kulkarni. He was very Soft spoken, intelligent, large hearted and a lover of music. Once when we went to visit him, he commented, “Parkinson’s is one of my many ailments.” He was a man of less words, maybe because he was hard of hearing. But my husband and he belonged to the same line of work hence became good friends. He was the HR head at KSB.


The ones who left us # 1 Dr. Prabhakar Deshpande Shobhna Tai
मराठीत वाचा हिंदी में पढ़े Today is Ram Navami. We are missing Dr. Deshpande a lot. Every year on Ram Navami, when we visited the Daulat Ram Mandir, we would come across him strolling in the nearby park as he lived nearby. This had become a ritual since we first met at the Parkinson’s Mitra Mandal. If we did not meet him at the park, we would go to his house. Deshpande, who was over ninety years old, would be impeccably dressed in a white dhoti, kurta and topi. Pleasant person


Emotional Moments of Parkinsons #4 Shobhana Tai
मराठीत वाचा हिंदी में पढ़े Parkinson’s Mitra Mandal does not have an independent office. We hold the executive committee meetings at the residence of the members. The criteria to choose the meeting place is that it should be centrally located making it easily accessible for the participants. One of our well-wisher, Rekha Acharya has been asking us to hold this meeting at her residence for the last seven to eight years. But, she lived in the MIT campus making it inconvenien


Stories of Parkinson’s # 11 Shobhana Tai
मराठीत वाचा हिंदी में पढ़े Old age and Parkinson’s have always been linked as have tremors and Parkinson’s. Initially, I too believed that all tremors meant Parkinson’s. Later when I came in contact with the Parkinson’s MitraMandal and began going for home visits, I met over twenty to twenty five people who did not have tremors but suffered from Parkinson’s. I understood that Parkinson’s and tremors are not interlinked. One of our senior member, Shri Sharat Chandra Patwardha


Emotional Moments # 1 Parkinson
Shobhana Tirthali हिंदी में पढ़े मराठीत वाचा Today let us talk about, Anjali Mahajan, who is the epitome of social awareness, enthusiasm and surprising talent. She is a part of many projects that surprise people. The pain of losing her nineteen year old daughter to cancer, her husband, Mr. Keshavrao’s progressive Parkinson’s , her hundred and five years old mother in law and her changing mental and physical components due to her illness does not pose an obstacle in her work.
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